Can I Get Your e-Autograph?

Your autograph can help people with epilepsy.  The Epilepsy Foundation is circulating an online petition  with the purpose of increasing awareness and encouraging lawmakers to support research and legislation that can improve the lives of those with epilepsy. By simply taking 30 seconds to visit the epilepsy foundation website and sign the online petition, you can help to make a difference.

More than 3,000,000 Americans have Epilepsy, and 200,000 new cases are diagnosed annually.  As newly elected officials prepare to take office, send a message to them to support policies that end discrimination, improve access to care, and increase scientific and medical research into the causes and treatment of epilepsy.

So, can I get your e-Autograph?

Epilepsy Foundation-sign the epilepsy petition

Fore!

Attention Dayton Area Golfers!
If you are looking for a great excuse to get out and hit the links, consider playing in the 2008 Epilepsy Foundation of Western Ohio Golf Scramble.

The event will be held on Monday September 29th, 2008 at Heatherwoode Golf Club in Springboro, Ohio.  Things get started at 11:30 and the fun lasts all day long.

Not a golfer, but still want to get involved?  The EFWO is also seeking volunteers to help run the event and there are still opportunities available for business sponsorships.  If you are interested, please contact the Epilepsy Foundation of Western Ohio.

Here is a quick run-down of the day’s events:

Schedule of events
11:30 Registration and Practice
1:00 Shotgun Start to Scramble
6:00 Dinner & Speaker
6:30 Awards Ceremony
First, Second & Third Place

The Epilepsy Foundation of Western Ohio was founded in 1974 as a not-for-profit voluntary health organization that provides education, support, and advocacy for people with seizure disorders and their families. The Foundation also promotes understanding of epilepsy through educational programs offered in the community to schools, organizations, professional audiences, first responders, businesses, government, and the general public.

By supporting the Golf Scramble for Epilepsy, you will assist the Foundation in providing vital services and programs for residents from 11 western Ohio counties, which include Auglaize, Champaign, Clark, Darke, Greene, Logan, Mercer, Miami, Montgomery, Preble, and Shelby. With your sponsorship and participation, the Foundations can continue to offer its services to persons with epilepsy free of charge.

For more information, email the Epilepsy Foundation or download the event flyer.

Living With Epilepsy

The September 2008 issue of Parents Magazine has a great article about a Massachusetts family and how they dealt with their son’s epilepsy.  (Unfortunately it was not posted on their web site, and did not turn up in numerous web searches.  Should you find a link please let me know)

The story centers around a young boy named Michael, who suffered from 2 types of seizures that sound very similar to those that my son experiences.  The similarities between the descriptions their lives to our day to day reality was striking.  Michael’s parents spoke about how their child suffered through hundreds of seuzures a day, and how they “got used to living in crisis mode.”

I don’t want to paint this as a negative story, as it was actually quite informative and inspiring.  As parents of a child with epilepsy, we are often asked what our family life is like.  This article really sheds light into much of what life is like for us, and I imagine what life must be like for many other families who have a child suffering through epilepsy.

Their story has a happy ending, as their son Michael has now been seizure free for some time thanks to the right medications, early detection, and a lot of luck.  I am thrilled for Michael and his family.  I imagine that having Michael seizure free must be a wonderful feeling - one I hope we might experience someday.  Reading this article helped to further that hope.

One thing that we definately share with Michael’s family is this.  Our experience, like theirs, has taught us not to sweat the small stuff in life any more.

The article also features the following facts about Epilepsy: (Taken from the Parents article)

• The Brain is made up of 100 Billion nerve cells, which communicate with each other and the rest of the body.
• A seizure is triggered by abnormal electrical activity that causes a change in sensation, movement, behavior or consciousness.
• Doctors diagnose epilepsy after a child has two or more unprovoked seizures, which means that they aren’t caused by something external, such as a fever.
• Epilepsy is actually an umbrella term covering many diseases and syndromes.
• Epilepsy affects about 3 million people in the United States, and 45,000 children are diagnosed with epilepsy each year.
• There are 30 types of seizures, which can last from a few seconds to two minutes or longer.  In rare cases, they can be fatal.
• Drugs, surgery, or a special high fat / low-carb diet are effective in about 80% of cases.  Kids may be good candidates for surgery if their seuzures - unlike Michael’s - can’t be controlled with medication and are caused in a specific area of the brain.

If you would like to learn more about epilepsy or need help dealing with epilepsy, please visit the Epilepsy Foundation of Western Ohio at www.ohioepilepsy.org

The Epilepsy Foundation is always looking for volunteers.   If you would like to join in the fight against epilepsy, please visit the volunteer page of the EFWO site.

Thanks to Our Dirty Friends

As a member of the board of the EFWO and a parent of a child who has epilepsy, I want to say thanks to the record number of people who turned out Saturday for MUDSTOCK 08, the Epilepsy Foundation of Western Ohio’s annual charity fundraiser event.  It was a huge success, drawing in roughly 2,400 people from the Miami Valley and beyond, and raising over $80,000 in the process.   Here are some pictures courtesy of the Dayton Daily News.

Thanks also to the long list of corporate sponsors, the hundreds of volunteers, and to everyone who was involved in making MUDSTOCK 08 successful.  Special thanks to Jim Hausfeld from ClearChannel, who served as the ringmaster for the event, and to EFWO Executive Director Janine Poppa.

The money raised will represent nearly 1/3 of the operating budget for the organization, which serves residents of Auglaize, Champaign, Clark, Darke, Greene, Logan, Mercer, Miami, Montgomery, Preble, and Shelby counties in Western Ohio.

If you are interested in getting involved with the Epilepsy Foundation of Western Ohio, contact me or visit the Epilepsy Foundation of Western Ohio home page for more information.  We are always in need of volunteers.

Volleyball players get muddy for a good cause